Costello Syndrome Family Network - United States

8th International Costello Syndrome Family Forum

Tuesday, July 30, 2013Sunday, August 4, 2013 - Orlando, Florida



MISSION STATEMENT
- To raise awareness about Costello syndrome
- To provide families with information, support and advocacy
- To support and advocate for Costello syndrome research


DONATIONS

Donate securely using credit card online or mail check or money order to the address below. Note the name of the person with Costello Syndrome, if applicable. 

Costello Syndrome Family Network
PO Box 516
Woodinville, WA 98072-0516


2013-2015 Board of Directors

Sandra Taylor, President

Cherie Takemoto, Vice President

Lisa Schoyer, Secretary

Matt Stevenson, Treasurer

Tammy Moore, Member-at-Large

Angelica Thomas, Member-at Large

Lindsey Morse, MS, CGC, Member-at-Large

 

 

News and UpdatesSign up for Updates

2015 Family Forum

Q & A's

Book Your Room

2013 Family Forum

2013 Conference Program

2013 Conference Resources

2011 Family Forum

2011 Conference Program

Speaker Biographies

Useful Links

CSFN Newsletters

Helpful Resources

Professional Advisory Committee

CostelloKids (International site)
http://costellokids.com

Family Voices
http://www.familyvoices.org

Gene Testing
http://www.ncbi.nlm.nih.gov/sites/GeneTests

National Disability Rights Network
http://www.napas.org

Parent to Parent USA
http://www.p2pusa.org

RASopathy Network
http://ras-pathway-syndromes.com

Feeding Tube Awareness Foundation
http://feedingtubeawareness.org


Contact us at:

1-848-228-CSFN (2736)

Charity EIN: 02-0622876